布村 多佳子
   Department   School of Medicine(Tokyo Women's Medical University Hospital), School of Medicine
   Position   Associate Professor
Article types Original article
Language English
Peer review Peer reviewed
Title Epidemiology conduction of paediatric rheumatic diseases based on the registry database of the Pediatric Rheumatology Association of Japan.
Journal Formal name:Modern rheumatology
Abbreviation:Mod Rheumatol
ISSN code:14397609/14397595
Volume, Issue, Page pp.-
Author and coauthor Narazaki Hidehiko, Akioka Shinji, Akutsu Yuko, Araki Mariko, Fujieda Mikiya, Fukuhara Daisuke, Hara Ryoki, Hashimoto Kunio, Hattori Seira, Hayashibe Ren, Imagawa Tomoyuki, Inoue Yuzaburo, Ishida Hiroyuki, Ito Shuici, Itoh Yasuhiko, Kawabe Tomohiro, Kitoh Toshiyuki, Kobayashi Ichiro, Matsubayashi Tadashi, Miyamae Takako, Mizuta Mao, Mori Masaaki, Murase Ayako, Nakagishi Yasuo, Nagatani Koji, Nakano Naoko, Nishimura Toyoki, Nozawa Tomo, Okamoto Nami, Okura Yuka, Sawada Hiromi, Sawanobori Emi, Sugita Yuko, Tanabe Yujiro, Tomiita Minako, Yamaguchi Ken-Ichi, Yasuoka Ryuhei, Yokoyama Koji
Authorship Lead author
Publication date 2022/09
Summary OBJECTIVES:Although epidemiological surveys of paediatric rheumatic diseases in Japan have been conducted they were single surveys with no continuity. This is the first report of the Pediatric Rheumatology Association of Japan (PRAJ) registry database, which was established to continuously collect data for paediatric rheumatic diseases.METHODS:'PRICUREv2' (Pediatric Rheumatology International Collaborate Unit Registry version 2) is a registry database established by the PRAJ. The registry data were analysed for the age of onset, time to diagnosis, sex differences, seasonality, and other factors.RESULTS:Our data showed the same trend regarding rates of paediatric rheumatic diseases reported in Japan and other countries. The age of onset was lower in juvenile idiopathic arthritis (JIA) and juvenile dermatomyositis (JDM) and higher in systemic lupus erythematosus (SLE) and Sjögren's syndrome (SS). The time to diagnosis was relatively short in JIA and SLE but longer in JDM and SS. Rheumatoid factor-positive polyarticular JIA showed a seasonality cluster with regard to onset.CONCLUSION:PRICUREv2 aided the retrieval and evaluation of current epidemiological information on patients with paediatric rheumatic diseases. It is expected that the data collection will be continued and will be useful for expanding research in Japan.
DOI 10.1093/mr/roac112
PMID 36112493