布村　多佳子
   Department   School of Medicine(Tokyo Women's Medical University Hospital), School of Medicine
   Position   Associate Professor
Article types Original article
Language English
Peer review Non peer reviewed
Title Survey of attitudes of non-pediatric rheumatologists among councilors of the Japan College of Rheumatology regarding transitional care.
Journal Formal name：Modern rheumatology
Abbreviation：Mod Rheumatol
ISSN code：(1439-7609)1439-7595(Linking)
Domestic / ForeginForegin
Volume, Issue, Page pp.1-13
Author and coauthor Miyamae Takako, Takei Syuji, Itoh Yasuhiko, Yamanaka Hisashi
Authorship Lead author
Publication date 2017/02
Summary Objectives The transition from pediatric to adult healthcare systems has recently received worldwide attention. Surveys of the attitudes of Japanese non-pediatric rheumatologists regarding transitional care were conducted. Methods Non-pediatric rheumatologists among councilors of the Japan College of Rheumatology were enrolled in the surveys. Experiences of adult patients with childhood-onset rheumatic diseases, ideal medical care for these patients, and factors that made the transition to adult care difficult were examined via e-mail. Results Overall, 201 non-pediatric rheumatologists (21.2%) responded to the surveys. Ninety-one percent had previous experience with patients with childhood-onset rheumatic disorders. Transition to non-pediatric institutes was supported by about 90% of respondents. However, only 32% of non-pediatric rheumatologists had no hesitation about caring for adults with childhood-onset rheumatology disorders. Two main factors prevented smooth transitions to non-pediatric care: inadequacy of non-pediatric care (57%) and lack of independence from parents/family (53%). The majority of non-pediatric rheumatologists hesitated about medical care for patients with autoinflammatory syndromes, whereas they became familiar with articular juvenile idiopathic arthritis without hesitation (86.6%); 93% of respondents requested more opportunities to learn about pediatric rheumatology disorders. Conclusions Sharing additional knowledge about pediatric rheumatology within the non-pediatric rheumatology field is required.
DOI 10.1080/14397595.2017.1285846
PMID 28165841