ヌノムラ　タカコ   Nunomura Takako   布村　多佳子    所属   医学部 医学科（東京女子医科大学病院）    職種   准教授
論文種別	原著
言語種別	英語
査読の有無	査読あり
表題	Epidemiology conduction of paediatric rheumatic diseases based on the registry database of the Pediatric Rheumatology Association of Japan.
掲載誌名	正式名：Modern rheumatology 略　 称：Mod Rheumatol ISSNコード：14397609/14397595
巻・号・頁	pp.-
著者・共著者	Narazaki Hidehiko, Akioka Shinji, Akutsu Yuko, Araki Mariko, Fujieda Mikiya, Fukuhara Daisuke, Hara Ryoki, Hashimoto Kunio, Hattori Seira, Hayashibe Ren, Imagawa Tomoyuki, Inoue Yuzaburo, Ishida Hiroyuki, Ito Shuici, Itoh Yasuhiko, Kawabe Tomohiro, Kitoh Toshiyuki, Kobayashi Ichiro, Matsubayashi Tadashi, Miyamae Takako, Mizuta Mao, Mori Masaaki, Murase Ayako, Nakagishi Yasuo, Nagatani Koji, Nakano Naoko, Nishimura Toyoki, Nozawa Tomo, Okamoto Nami, Okura Yuka, Sawada Hiromi, Sawanobori Emi, Sugita Yuko, Tanabe Yujiro, Tomiita Minako, Yamaguchi Ken-Ichi, Yasuoka Ryuhei, Yokoyama Koji
担当区分	筆頭著者
発行年月	2022/09
概要	OBJECTIVES:Although epidemiological surveys of paediatric rheumatic diseases in Japan have been conducted they were single surveys with no continuity. This is the first report of the Pediatric Rheumatology Association of Japan (PRAJ) registry database, which was established to continuously collect data for paediatric rheumatic diseases.METHODS:'PRICUREv2' (Pediatric Rheumatology International Collaborate Unit Registry version 2) is a registry database established by the PRAJ. The registry data were analysed for the age of onset, time to diagnosis, sex differences, seasonality, and other factors.RESULTS:Our data showed the same trend regarding rates of paediatric rheumatic diseases reported in Japan and other countries. The age of onset was lower in juvenile idiopathic arthritis (JIA) and juvenile dermatomyositis (JDM) and higher in systemic lupus erythematosus (SLE) and Sjögren's syndrome (SS). The time to diagnosis was relatively short in JIA and SLE but longer in JDM and SS. Rheumatoid factor-positive polyarticular JIA showed a seasonality cluster with regard to onset.CONCLUSION:PRICUREv2 aided the retrieval and evaluation of current epidemiological information on patients with paediatric rheumatic diseases. It is expected that the data collection will be continued and will be useful for expanding research in Japan.
DOI	10.1093/mr/roac112
PMID	36112493