ヌノムラ　タカコ   布村　多佳子    所属   医学部 医学科（東京女子医科大学病院）    職種   准教授
論文種別	原著
言語種別	英語
査読の有無	査読あり
表題	Social independence evaluation index for Japanese patients with childhood-onset chronic diseases.
掲載誌名	正式名：Frontiers in pediatrics 略　 称：Front Pediatr ISSNコード：22962360/22962360
巻・号・頁	10,pp.923497
著者・共著者	Inoue Yuzaburo, Umebayashi Hiroaki, Matsui Toshihiro, Nishiyama Susumu, Sakurai Ikuho, Maru Mitsue, Takeda Tetsuro, Tanigawa Koji, Miyamae Takako
担当区分	最終著者
発行年月	2022/12
概要	INTRODUCTION:This study established an independent evaluation index for patients with childhood-onset chronic diseases in Japan.METHODS:From November to December 2020, three Delphi rounds were conducted. Thirty-nine participants completed at least one survey. We asked them about targets of social independence for 10 types of activities (education/labor/finance/acquisition of necessities/housing/transportation/leisure/social relationship/intimate relationships/sexuality). The Delphi technique was to be repeated until a consensus of over 80% of participants was reached.RESULTS:The targets chosen for measuring independence in patients with childhood-onset chronic diseases were as follows: "Graduation from high school," "Labor for livelihood (including temporary turnover)," "Financially independent (including temporary turnover, excluding students)," "Buy or rent a house and buy the daily necessities and get the public services you need to live," "Do housework alone," "Plan alone and use transportation to get around," "Participate in play/recreation/leisure activities on own initiative," "Engage in relationships with other people outside of a limited environment (home, school, office, hospital, etc.)," "Create and maintain intimate or romantic relationships between individuals (couples, lovers, sexual partners)," and "Use or know how to use contraceptives and how to prevent sexually transmitted diseases."CONCLUSIONS:We established an independent evaluation index for patients with childhood-onset chronic diseases in Japan through a three-round Delphi process. The assessment of social independence using our independent evaluation index may help plan for and provide appropriate support and assistance to these patients.
DOI	10.3389/fped.2022.923497
PMID	36561489